Editor's Note

The FOI Advocate is a compendium of ideas, edited story excerpts and other materials from a variety of Web sites, as well as original concepts and analysis. When the information comes directly from another source, it will be attributed and a link will be provided whenever possible. The blog relies on the accuracy and integrity of the original sources cited. We will correct errors and inaccuracies when we become aware of them.
Showing posts with label health data. Show all posts
Showing posts with label health data. Show all posts

Tuesday, October 20, 2009

FOI at Work: The Washington Post Investigates AIDS Organizations in DC

Check out this investigation undertaken by The Washington Post:

"Over ten months, the Washington Post analyzed the spending, services, and finances of every specialized AIDS organization funded by D.C.'s HIV/AIDS Administration from 2004-2008, an estimated 90 groups, building a database from tax returns, audits, lawsuits, real estate records, D.C. Council records, and corporate and police reports. The Post also obtained grant agreements, invoices and government correspondence for about 60 of these groups. The newspaper interviewed dozens of people with HIV or AIDS patients, their families and service providers, and visited more than a dozen offices across the city."

Friday, July 24, 2009

CREW not pleased with release of health care visitors list

The list of White House visits by health care executives released by President Barack Obama indicate that private meeting began shortly after he took office, the AP reported. The list was released after Citizens for Responsibility and Ethics in Washington threatened to sue the White House for the logs, which are maintained by the Secret Service. CREW says it will continue seeking visitor logs from the White House and that the disclosure "in no way satisfies" its request. "The actual visitor records likely would indicate with whom each official met, the administration official who requested clearance for the visitor, the time of the meeting, the duration of the meeting and, in some cases, the purpose of the meeting. In addition, no information was provided regarding any visits to the vice president's residence," the group said in a written statement.
President Obama's administration began holding private meetings with health industry executives and lobbyists at the White House a few weeks after he took office, a visitor list released Wednesday night by the White House shows.

Richard Umbdenstock, president of the American Hospital Assn., was at the White House on Feb. 4 and has been back at least half a dozen times since, most recently May 22. Other industry executives making February visits included health insurance company chief executives Angela Braly of WellPoint Inc. and Jay Gellert of Health Net Inc.

Gellert, a $500 donor to Obama's presidential campaign, was there Feb. 10, twice in March and on May 11. Braly visited on Feb. 13.
More here.

Also, WH list of health exec visits inadequate, group says from Politico
And, Obama hold on records raises hypocrisy charge from Washington Times: "Sending us a letter is not the same as releasing the records. There is a lot of information in those records that is not in the letter," CREW Executive Director Melanie Sloan said. "Releasing names for political expediency is not the same thing as transparency. This is not the type of transparency they promised."

Thursday, February 19, 2009

Proposed act would be 'blow to the public's right to access vital scientific data'

The Association for Health Care Journalists warns that new House legislation could limit public access to federal research.
Legislation introduced in the U.S. House of Representatives on Feb. 3 “would constitute a blow to the public’s right to access vital scientific data” if it goes forward, according to a statement by the Association of Health Care Journalists.

The Fair Copyright in Research Works Act, HR 801, introduced by U.S. Rep. John Conyers Jr. and others, would reverse a National Institutes of Health policy that requires federal research grantees to provide their peer-reviewed articles to PubMed Central, a free online database. Under the existing policy, manuscripts resulting from federally-funded research must be made publicly available within 12 months of their publication date.
More here.